In honor of our late son Joshua, and his CNM/MTM peers:

We are proud, yet humbled to release this beautiful documentary about Joshua's life, and legacy to find a cure for myotubular myopathy (MTM). It was bitter sweet to relive this journey, yet we are reminded of how far we've come. This 18 minute video spans 22 years of our lives and depicts the trials, tribulations, and great HOPE we have for the future of our MTM children. 
We believe our family's dream of finding a cure is within reach. 

Watch Documentary 

 
Your investment allowed us to produce robust pre-clinical data for under 10 million dollars. We could not have accomplished these historical breakthroughs without your love, support and investment in our guarded dream. God has truly surrounded us on this journey with people who have the same passion and determination as we have for finding a cure. We invite your continued support as we venture into more groundbreaking, life saving initiatives.

Make a meaningful gift

The Joshua Frase Foundation