News and press releases about the Joshua Frase Foundation and its efforts behind CNM/MTM

Tue, Jul 21, 2015

RARE Champion of Hope – Advocacy

I want to congratulate Alison Rockett Frase for winning such a prestigious award for Advocacy from the Global Genes foundation, a group that has created the ‘Gold Standard’ for rare disease awareness across the globe. I do not brag well, but I must say that every word uttered is well deserved and earned through her tears, joy, pain and happiness over the last 2 decades.