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News and press releases about the Joshua Frase Foundation and its efforts behind CNM/MTM

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Wed, Jun 15, 2011

New Development of Treatment for Myotubular Myopathy Initiated by Joshua Frase Foundation

The Joshua Frase Foundation, a Jacksonville-based nonprofit, announces its collaboration with Généthon, a French biotherapy lab, and Wake Forest University School of...
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Mon, Jun 13, 2011

Hold Onto Your Dreams

Joshua was born with a rare muscular disease, Myotubular Myopathy, and he wasn’t supposed to live for more than a day but he beat the odds and lived till he was...
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Our recent campaign to increase participation in our Family Registry was published in MDA Quest Magazine, and can be seen below.